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European Heart Journal Advance Access originally published online on December 17, 2004
European Heart Journal 2005 26(3):308-313; doi:10.1093/eurheartj/ehi079
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European Heart Journal vol. 26 no. 3 © The European Society of Cardiology 2004; all rights reserved.

The Cardiology Audit and Registration Data Standards (CARDS), European data standards for clinical cardiology practice

M. Rachel Flynn1, Conor Barrett2, Francisco G. Cosío3, Anselm K. Gitt4, Lars Wallentin5, Peter Kearney6, Moira Lonergan1, Emer Shelley1 and Maarten L. Simoons7,*

1Department of Epidemiology and Public Health, Royal College of Surgeons in Ireland, Dublin 2, Ireland
2Cardiology Departments, Cork University Hospital, Cork and Mater Misericordiae University Hospital, Dublin, Ireland
3Cardiology Department, Hospital Universitario de Getafe, Madrid, Spain
4Cardiology Department, Ludwigshafen, Germany
5Uppsala Clinical Research Centre, University Hospital Uppsala, Sweden
6Cardiology Department, Cork University Hospital, Cork, Ireland
7Chief Department of Cardiology, Thoraxcenter, Erasmus University Medical Center, PO Box 2040, 3000 CA, Rotterdam, The Netherlands

Received 2 November 2004; accepted 18 November 2004; online publish-ahead-of-print 17 December 2004.

* Corresponding author. Tel: +31 10 463 3938; fax: +31 10 463 5258. E-mail address: m.simoons{at}erasmusmc.nl

Abstract

Aims Systematic registration of data from clinical practice is important for clinical care, local, national and international registries, and audit. Data to be collected for these different purposes should be harmonized. Therefore, during Ireland's Presidency of the European Union (EU) (January to June 2004), the Department of Health and Children worked with the European Society of Cardiology, the Irish Cardiac Society, and the European Commission to develop data standards for clinical cardiology. The Cardiology Audit and Registration Data Standards (CARDS) Project aimed to agree standards for three modules of cardiovascular health information systems: acute coronary syndromes (ACS), percutaneous coronary interventions (PCI), and clinical electrophysiology (pacemakers, implantable cardioverter defibrillators, and ablation procedures).

Methods and results Data items from existing registries and surveys were reviewed to derive draft data standards (variables, coding, and definitions). Variables common to the three modules include demographics, risk factors, medication, and discharge and follow-up data. Modules about a procedure contain variables on the lesion, the device, and medication during the procedure. The ACS module includes presenting symptoms, reperfusion and acute treatments, and procedures in hospital and at follow-up.

Conclusions The data standards were discussed and adopted at a conference involving EU member states in Cork, Ireland, in May 2004. After a pilot study, the standards will be disseminated to stakeholders throughout Europe.

Key Words: Data standards • Clinical audit • Service planning • Acute coronary syndromes • Percutaneous coronary interventions • Pacemaker • ICD • Cardiac ablation


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